Acerca de ataxia por glutenJennifer Thank you for your blog, which brings a sense of sanity to my chaotic world! It is wonderful to know we are not alone and that we Chucho have like-minded people who Gozque say straight up that having celiac disease sucks.
Weeks later, I accidentally came across information on gluten ataxia while researching vertigo and since I was familiar with a gluten free diet because of my sister, I decided to give it a try. Not only have I never had another bout of vertigo, all of the other odd symptoms cleared up within weeks or months.
Hi Deb: Sorry to hear that you have been struggling with your health so much. Dr. Perlmutter has lots of information on Gluten Ataxia & this might be a good resource for you. In addition, I started a website & have written a book The Gluten-Free Guide for a Healthy-Do-Over. I did this because I have been suffering for decades & it’s been a long road regaining my health (and I’m still working on it) & I have learned so much during this process that I had to share it.
Tammy Before discovering you and your amazing followers I honestly thought I was just nuts. Now I know to rest when needed, to not trust something just because it says gf on the label, and most importantly, to advocate and be a voice for myself and this disease. Thank you Gluten Dude! Keep up your awesomeness.
You may get a ton of posts on this. I hope so. One of the most common suggestions is to avoid changing to a gluten free diet until you have gotten tested for celiac disease. This is because the tests Chucho be negative if your system is not continually being hurt by gluten, and if indeed it is a problem.
Then whisked into Sheffield Hallamshire neuro ward, the first guy a Jr Dr who saw me on admission said perhaps it could be coeliac disease. The Proffessors said, no way is this lady coeliac. Hum, they should have listened to him.
My first neurologist did the same sorts of little tests and told me I was just attention seeking. Why couldn’t he have seen my non-drinking “drunk” days?
In summary, the authors suggest a system of classification based on clinical features Vencedor the first distinction, mode of inheritance Vencedor the second distinction, and pathogenetic mechanisms Figura the third distinction. Although far from an ideal system, it serves to bring some order into a heterogeneous group of disorders.
It has never returned, and I still have problems with vertigo. The doctors don’t have answers for me either, and I have also wondered if there is a connection.
Jennifer I want to thank you for being so honest and supporting a gluten free community that uses their knowledge and power for the good of the community. You are fighting the good fight sir and I appreciate you more than my words Gozque really say.
Unfortunately Lymphadema is just Triunfador much of an “unknown” or should I say not yet through the major medical studies so it isn’t a prominent research or medical topic. Whenever I have to talk Militar people (family included) or doctors about having celiac and/or lymphadema it is like talking to a brick wall. People just think I am on a new diet fad or am lazy when my leg swells twice the size it should be from the lymphatic fluid builds up.
But no, I haven’t found or heard of there being a link. I feel that it is possible but the doctors don’t seem to even want to consider something like it.
Hollie – it definitely exists. Ataxia is a shrinking, or damage to your ceberellum creating certain symptoms related to sensation and motor control. The problem is, there’s no test to distinguish it from regular ataxia. A known heightened correlation to celiac’s disease and ataxia exists, and people with ataxia and no other celiac symptoms have been treated with a gluten free diet (frente a leer más other instances where gluten ingestion seems irrelevant).
Jo I just wanted to drop a quick line to say thank you. I was just recently diagnosed via endoscopy, with the blood test several months before that showing very high anti body levels (there was a waiting list to get the endoscopy, hence the delay). In that time however your blog/website and latterly eBook have been an invaluable resource which has allowed me to really hit the ground running once the diagnosis was confirmed.